Welcome to the CADASIL website


Welcome to the CADASIL website; a resource for those diagnosed with CADASIL, their relatives and carers.  As CADASIL is a rare condition, little reliable information is available on the internet.  On this website we hope to be able to provide up-to-date and accurate information.  We hope that the website will expand over the coming months and years and would welcome input from patients and family members. In addition to providing useful information for CADASIL patients and relatives we also supply links to other websites where more information can be found.


The information on this website has been primarily provided by Professor Hugh Markus, Professor of Stroke Medicine at the University of Cambridge and Consultant Neurologist at Addenbrooke’s Hospital, Cambridge and by Glen Brice, Genetic Counsellor from the Clinical Genetics Department at St George's Hospital, London. Together, we have been involved in caring for CADASIL sufferers and their families for many years and have a wide range of experience in dealing with the problems associated with the condition.


As with any medical condition, we do rely on hearing the experiences of patients and family members in order to develop new services which better cater to the needs of those affected. If you have any suggestions for improvement to the website or new sections which you think we should add, please do contact us. Feedback or suggestions can be submitted here






Cambridge CADASIL Mini Meeting - 18th July!


Due to popular request we will be holding a mini CADASIL meeting online on Thursday 18th July from 5pm until 7pm (UK time). 

At our first mini-meeting Prof Hugh Markus will answer some of the commonly asked questions in CADASIL and you will also have a chance to ask questions.


Programme for our first mini meeting is available here!


Please register for the meeting by 4pm on 17th July 2024. You can register here


Any queries please contact Amy at aj602@medschl.cam.ac.uk





Cambridge CADASIL Meeting 2024

The Cambridge CADASIL Meeting took place in person on Thursday 22nd February 2024 at the Clifford Allbutt Building, Cambridge, UK.  If you missed the meeting you can catch up on the talks here!





We have had a number of enquiries on this topic by our patients and families. Here is the best guidance we have for CADASIL patients wondering how it affects them. Having the CADASIL gene does not mean you are at high risk if you are well and do not have symptoms.  However if you have neurological complications of CADASIL such as stroke, disability, or dementia then you are at high risk. 

The Association of British Neurologists has provided some advice for patients with neurological disease, which applies to CADASIL and can be accessed here. They will continue to update it on their website via this link.


If you have questions we will always do our best to reply via the info CADASIL email (info@cambridgestroke.com).


With best wishes and we hope you do stay safe


The Cambridge CADASIL team



Participation in research

We would like to take the opportunity to remind you that anyone who is interested in participating in our research (either as a CADASIL patient or as a healthy volunteer) would be very welcome to get in touch. If you would like to sign-up to be contacted about research then please contact: mmh64@medschl.cam.ac.uk. For non-research related queries please email info@cambridgestroke.com.